Reports of experience

Disabled sports: Finn-Kristian Spies takes 1st place

Landgraaf. The 14-year-old young man from Würgendorf excels at "European Para Snow Sport Youth Circuits" in slalom and wins.

sz – At the invitation of the International Paralympic Committee the (IPC), approximately 50 disabled adolescents from five European countries met in the ski hall of Landgraaf in the Netherlands. ... [more (only available in German)]

About self-confidence

Antonietta M. is the mother of an affected child. Her son is now a young man, independent, successful and stands on his own feet. Looking back, she tells other parents in a short letter what, from her point of view, is important in caring for an affected child. This letter can help raise spirits. ... [more (only available in German)]

Sending radiographs by email

Nowadays, you usually receive the results of an imaging procedure not only as a hard copy but also in digital form on CD. How can these images be sent via email with the least possible loss in quality? ... [more (only available in German)]

Radiographs with needle-based detectors

Most hospitals and radiology institutes work with standard detectors. In order to image the finest structures of a growing bone, we had to start looking for needle-based detectors... [more (only available in German)]

Interview with the BR Bayern 2 radio station

"Five to ten children are born without a calf bone in Germany every year. The shin bone is there, but the calf bone is missing. The affected legs are shorter and thinner, and the children cannot learn how to walk. In the U.S., the shorter leg is usually amputated—in Germany, we frequently use a fixator and count on the ability of the bone to grow. Even if it takes a long time, is hard on everyone involved, and is also very expensive. Because to stand on your own two feet is different than standing on one artificial foot, says Katja, who had surgery 13 times since she was born 13 years ago—and is getting closer and closer to her goal of "being able to stand in sand on both of my feet." ... [more (only available in German)] [audio]

The External Fixator book

What do you have to know before and after getting an external fixator? What do I have to take with me to the hospital? Can I walk with an external fixator? What is allowed and what is not? These and many other questions are answered in our External Fixator book... [more (only available in German)]

Hi, my name is Henrietta, and I am 10 years old.

I was born with a complex deformity of my left leg, called PFFD and fibular aplasia. I just call it my small leg. It does not grow at the same rate as my big leg, and it also grows crooked... [more (only available in German)]

Preparing for external fixator surgery

Our daughter suffers from fibular hypoplasia with a clubfoot problem and got her first external fixator for leg lengthening at the age of 5. We got ready for this surgery... [more (only available in German)]

"Pimp my external fixator"

We used transparent PVC tubing from the hardware store on our daughter's external fixator and have successfully fixed some sharp edges... [more (only available in German)]

Cruciate ligament plasty

After a very good consultation with Dr. Nader and his team, I decided to give cruciate ligament plasty a try. The fear before the surgery... [more (only available in German)]

Adjust the external fixator equally! But how equal is equal?

When our daughter got her first external fixator, we were told several times how important it is to turn the screws absolutely equally. Otherwise, the bone could get bent. ... [more (only available in German)]

Leg lengthening—a (radiographically) illustrated story

Our daughter (5 years old) suffers from fibular hypoplasia and, therefore, one leg is too short. When the difference in length of the two legs was about 7 cm, we decided in favor of leg lengthening with an external fixator. ... [more (only available in German)]

My cruciate ligament surgery

My name is Svenja, I am 12 years old and live in Koblenz. Like so many of you, I spend several weeks each year at the hospital in Vogtareuth. My left leg has fibular aplasia. ... [more (only available in German)]